August 25, 2009
It has happened again…Andrew is bald. Although he is not showing any signs of losing his eyelashes or eye brows, his head is getting shinier by the day. So Friday we went to the doctor because we realized that his digestive tract was no longer working, and his formula from his feeding tube was going straight through him with no absorption. He lost 4.5 pounds in less than a week. The dr. wanted to admit him, but he was still feeling ok and we begged to stay at home. He is now on 100% IV nutrition through his port. It goes all night long and gives him all the nutrients he needs. He is feeling pretty good, but very shaky and weak. He pulled out the nose hose for now, and is really enjoying the break! He went to the doctor yesterday and his neutrophil counts have decreased quite a bit since Friday, but we are hoping they will recover before his next chemo admit on September 1st.
Andrew starts school next week and he is so excited. He will have the same tutor, but two different teachers, one from Monroe and one at St. Luke’s school. He will attend St. Luke’s school Mon, Wed, and Fridays from 1-4 as long as he has the strength, and the tutor will visit twice a week. We are hoping Andrew will be able to be more involved with his homeroom class at Monroe through webcam lessons and attending some fieldtrips if he is able.
Andrew had a photoshoot a couple weeks back for St. Baldricks. I thought I would share some of the amazing pictures Rachel Kemble took.
Eyes of Hope
Chillin in the pool
August 25th, 2009 at 12:09 pm
Brittany and Andrew…Its a darn good thing that you are so cute Andrew…you can have a bald head and look great. Sounds like your having some real ups and downs, I so hope that things calm down for you so you can enjoy school…Well just wanted to say hi and as always you are in my thoughts and prayers.
Brittany, I want to thank you for keeping everyone updated on Andrew…your an amazing women…Love Jane
August 25th, 2009 at 12:58 pm
Thanks Jane!
August 25th, 2009 at 2:31 pm
Britt, Those are the most adorable pictures ever. He is such a sweetie. And, Andrew, who cares if you’re bald. You’re the best lookin boy I know bald and all. Keep up the spirits honey and keep smiling. You’re getting so close to the end of all this. Love you lots and lots, Nana
August 26th, 2009 at 8:35 pm
what super pictures. That smile is wonderful. You are one brave guy and your mom and sister too. I wish my family hadn’t moved in this weekend, I sure hope you are feeling up to coming next weekend. I am keeping my fingers crossed.
August 27th, 2009 at 8:37 am
Hi guys, those pictures are great! I welcome you back to the Order of Baldheads, Andrew. Hope you have a good week! I am praying for you and love you all bunches.
August 27th, 2009 at 1:07 pm
Brittany:
What a handsome and strong young man you have. I pray for you all often and love to check up on your little man. Andrew is an inspiration! Hang in there!
August 27th, 2009 at 7:59 pm
Andrew – I love the pool shot! Michael Phelps aint’ got nothin’ on you!